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ROHHAD stands for Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation. Currently, there is no treatment or cure for ROHHAD and the source of this disease has not yet been determined. Symptoms of ROHHAD vary for each child and are usually misdiagnosed.
They generally begin with rapid onset obesity in the first 2-4 years of life, followed by impairment of the nervous system and inevitably reduced lung function leaving most ROHHAD patients unable to breathe without the use of a ventilator. Without the help from supporters such as you, the organizations’ mission to find a cure and help the families of children diagnosed with ROHHAD would be impossible to accomplish.

We thank you for your support.